Its been a while since I sat here and had the time, the energy, and even the motivation to write anything. If it wasn't for the...

The day after I wrote the last one, Eira pulled her tube out twice. A visit from a community nurse in the morning, followed by a visit to...

This week has been a tough one. Not because of any one dramatic moment — but because of the constant, grinding reality of what life looks...

A lot has happened in the 10 days or so since I wrote here, a period of immense generosity from communities we didn't even know existed,...

As Eira continues to be unsettled—with no answers and no end in sight—we found ourselves back in hospital again. Not just for an...

As we continue to adjust to life at 'home', this week has for sure been the toughest. Eira has been incredibly unsettled, and has had to...

Just over nine weeks ago, we walked through the hospital doors with Eira in our arms. I don’t remember what the weather was like that...

This weekend was truly special, we got given the opportunity to spend the weekend away from the hospital on 'home leave'. Although it...

As the medical side of Eira's care slows down in hospital, with us being fully trained on all aspects of her care, including giving her...

There are moments in life that may seem small to some, but to us, this week was massive. Eira's physiotherapy progressed to using a...

As we enter the third week of being back in UHW, the word Home is being mentioned more and more, not by us, by the medical professionals....

As we reach the end of our first week back i hospital, we firstly just want to say Thank You to every single person who has made a...

As we had anticipated, today (May 19th) a bed became available for Eira on Island Ward at Noah's Ark Children Hospital, luckily, we had...

Thursday 15th May Although very much still unsettled, we tried to make today a fun and positive one ahead of a busy day tomorrow. Emily,...

As Eira's recovery process continues and she continues to fight battles everyday, we also have to feel incredibly lucky to be where we...

So much has happened over the last few days, from incredibly proud moments, to incredibly worrying moments. Late last week we had a visit...

Almost a month ago today our lives completely changed..hearing the words that no parent should ever hear: ‘There’s nothing more we can...